- 1. Carcinoid
- (Category)
- Created on 30 November -0001
- 2. FLUSH POOP PRRT - Patient Story - Basel
- (Patient Stories)
- ... you are looking for regarding PRRT in Basel. Medical history: Midgut, liver mets. Diagnosed October 2012 (Ileum blockage). Familial Carcinoid – mother died of it. Debulked: Ileum October 2012; ...
- Created on 19 April 2016
- 3. Lutathera Expanded Access Program In U.S.
- (News)
- ... carcinoid tumors, progressive under somatostatin analogue therapy. Healthcare professionals and patients can learn more about the Lutathera EAP by visiting www.clinicaltrials.gov (trial number: NCT02705313). ...
- Created on 24 March 2016
- 4. Update to a Solider Story
- (Bad Berka)
- ... his family and bringing hope to other Americans battling carcinoid cancer. Dan had been experiencing digestive tract symptoms for a half-dozen years. When his symptoms became difficult to ignore, ...
- Created on 26 February 2014
- 5. Becca H
- (Rotterdam)
- ... good source of information and support is the email listing at the Acor.org website. You can go to the Carcinoid cancer selection and sign up for the email listing. It’s a network of NET patients and moderated ...
- Created on 26 February 2014
- 6. Ga68 - Orphan Drug Announcement
- (In the News)
- ... tumors. This designation is significant because it may lead to faster approval of the agent, which would greatly benefit carcinoid/NET patients in the United States. Click here to read the full release ...
- Created on 20 November 2013
- 7. PRRT Multi-Center Trial Now Open
- (In the News)
- A Study Comparing Treatment With 177Lu-DOTA0-Tyr3-Octreotate to Octreotide LAR in Patients With Inoperable, Progressive, Somatostatin Receptor Positive Midgut Carcinoid Tumours (NETTER-1) is now open ...
- Created on 21 July 2013
- 8. Multicenter PRRT Clinical Trial Announced
- (In the News)
- ... LAR in patients with inoperable, somatostatin receptor positive, histologically proven midgut carcinoid tumours; these patients should be progressive under Octreotide LAR. In case patients in either arm ...
- Created on 20 April 2012
- 9. Susan's Stor
- (Bad Berka)
- My name is Susan, and I was diagnosed with carcinoid in February 2002. Following nearly a decade of treatment in the U.S., I decided to seek PRRT treatment with Dr. Baum in 2011. With the help of Dr. Woltering ...
- Created on 28 January 2012
- 10. CCAN NET Cancer Patients Conference Long Island
- (Past Conferences )
- ... . In the US calibrations between neuropeptide plasma markers are sorely lacking between commercial – you can read the trends as long as stay with the same lab Carcinoid Tumors Blood Markers Serontonin ...
- Created on 20 August 2011
- 11. Roger J.
- (Bad Berka)
- ... the radiation. Finally he slid the thick lead box my way and carefully handled the radiation...Lutetium 177. It was supposed to do damage to the Carcinoid tumors in my liver. I watched the medicine ...
- Created on 13 June 2011
- 12. A Soldier's Stor
- (Bad Berka)
- ... revealed that my gallbladder was normal. However the spots on my liver were not. A Cat Scan was ordered and the Carcinoid Tumors were found. I then opted to go to The Center for Advanced Medicine at ...
- Created on 31 May 2011
- 13. Jim M.
- (Bad Berka)
- It was in September of 2010 when I finally decided to have PRRT. It had been 5 years, almost to the day, since my original diagnosis with Stage 4 NeuroEndocrine Cancer, A.K.A. Carcinoid. I knew quite ...
- Created on 22 April 2011
- 14. 1st World Congress on Ga-68 and Peptide Receptor Radionuclide Therapy
- (In the News)
- ... important for neuroendocrine cancers such as carcinoid and pancreatic neuroendocrine tumors because, according to Dr. Baum, NET cancer is not one disease. Neuroendocrine tumors are not a single tumor entity, ...
- Created on 07 April 2011
- 15. Elizabeth W.
- (Bad Berka)
- ... Cancer Online Resources (ACOR) Carcinoid Listserve and the Yahoo Groups site for Islet Cell Cancer. She related that Josh was a frequent contributor on both. I joined both sites and emailed with many ...
- Created on 22 March 2011
- 16. About this site
- (Uncategorised)
- This site is maintained by Josh Mailman and Gary Murfin, who have both undergone treatment at the Zentralklinik, Bad Berka Germany and is for informational purpose only. Gary Murfin: Diagnosed with carcinoid ...
- Created on 20 January 2011
- 17. Information for Referring Physicians
- (General MD)
- This section is for doctors who are considering the selection of PRRT to treat one of their patients. Considering PRRT for a Patient: What a physician should look for Progressive, somatostatin receptor ...
- Created on 19 July 2010
- 18. What is PRRT?
- (PRRT)
- ... tumors include gastroenteropancreatic tumors (socalled GEP-NETs), e.g. arising from the small bowel (often called carcinoid tumors), the pancreas, duodenum or stomach, but also from the large bowel or ...
- Created on 19 July 2010
- 19. Carcinoid Foundation
- (Search - Web Links / Support Orginizations)
- This website is constantly being updated as new information and research results become available. Special events that will benefit the carcinoid patient are posted on a regular basis. Information about ...
- Created on 30 November -0001
- 20. Carcinoid Foundation Blog
- (Search - Web Links / Support Orginizations)
- Created on 30 November -0001