This site is maintained by Josh Mailman and Gary Murfin, who have both undergone treatment at the Zentralklinik, Bad Berka Germany and is for informational purpose only.
Gary Murfin: Diagnosed with carcinoid of the ileum in September 2008 w/ mets to lymph, liver and sacral bone. Primary and affected lymph nodes resected in October 2008. First PRRT w/ Lu-177 in September 2009. Stable for 2 years. Second PRRT in September 2011. Has had multiple 68-Ga PET/CT scans to monitor his status. He returns to Germany in March of 2014 for restaging. Gary has a masters degree in Intelligence Research and a Ph.D. in quantitative statistics. He worked as the Director of Evaluation at the Cancer Center of Hawaii for seven years in a past life. He retired as a Vice-President of Marketing (Analytics) with Macy's Department Stores 5 months before his Dx in 2008.
Josh Mailman: Diagnosed with PNET in 2007. First PRRT in Bad Berka in May 2009. Josh has an MBA from the Anderson School of Management at UCLA and has been a technology entrepreneur for over 20 years. Currently Josh is the President of the NorCal CarciNET Community and Chairperson of the Patient Advocacy Advisory Board for the Society of Nuclear Medicine and Molecular Imaging. Josh is a patient advocate and former executive board member of the Society for Integrative Oncology (SIO) and was named SIO Patient Advocate of Year in 2010. Josh is a member of the National Cancer Institutes's Task force on Neuroendocrine Tumors. Recently Josh was elected to the board of the Education and Research Foundation for Nuclear Medicine and Molecular Imaging.
Disclaimer: Any information provided on this website is not intended to diagnose, treat, prescribe or give any other health-care advice or instruction. The site owners are not engaged in the practice of medicine or any other health-care profession and does not enter into a health-care practitioner/patient relationship with its visitors. We do not advise or recommend treatments or action with regard to matters relating to health or well-being other than to suggest that web visitors consult appropriate health-care professionals in such matters. This website's purpose is to encourage patients to become educated, engaged and ultimately empowered to help drive their own health care through numerous sources including, but not limited to, online research and "medical" networking with other patients.
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