PRRTInfo.org - A Resource for Patients Considering PRRT Treatment.

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1. Carcinoid
(Category)
Created on 30 November -0001
2. FLUSH POOP PRRT - Patient Story - Basel
(Patient Stories)
... you are looking for regarding PRRT in Basel. Medical history: Midgut, liver mets. Diagnosed October 2012 (Ileum blockage). Familial Carcinoid – mother died of it. Debulked: Ileum October 2012; ...
Created on 19 April 2016
3. Lutathera Expanded Access Program In U.S.
(News)
... carcinoid tumors, progressive under somatostatin analogue therapy. Healthcare professionals and patients can learn more about the Lutathera EAP by visiting www.clinicaltrials.gov (trial number: NCT02705313). ...
Created on 24 March 2016
4. Update to a Solider Story
(Bad Berka)
... his family and bringing hope to other Americans battling carcinoid cancer. Dan had been experiencing digestive tract symptoms for a half-dozen years. When his symptoms became difficult to ignore, ...
Created on 26 February 2014
5. Becca H
(Rotterdam)
... good source of information and support is the email listing at the Acor.org website. You can go to the Carcinoid cancer selection and sign up for the email listing. It’s a network of NET patients and moderated ...
Created on 26 February 2014
6. Ga68 - Orphan Drug Announcement
(In the News)
... tumors. This designation is significant because it may lead to faster approval of the agent, which would greatly benefit carcinoid/NET patients in the United States. Click here to read the full release ...
Created on 20 November 2013
7. PRRT Multi-Center Trial Now Open
(In the News)
A Study Comparing Treatment With 177Lu-DOTA0-Tyr3-Octreotate to Octreotide LAR in Patients With Inoperable, Progressive, Somatostatin Receptor Positive Midgut Carcinoid Tumours (NETTER-1) is now open ...
Created on 21 July 2013
8. Multicenter PRRT Clinical Trial Announced
(In the News)
... LAR in patients with inoperable, somatostatin receptor positive, histologically proven midgut carcinoid tumours; these patients should be progressive under Octreotide LAR. In case patients in either arm ...
Created on 20 April 2012
9. Susan's Stor
(Bad Berka)
My name is Susan, and I was diagnosed with carcinoid in February 2002. Following nearly a decade of treatment in the U.S., I decided to seek PRRT treatment with Dr. Baum in 2011. With the help of Dr. Woltering ...
Created on 28 January 2012
10. CCAN NET Cancer Patients Conference Long Island
(Past Conferences )
... . In the US calibrations between neuropeptide plasma markers are sorely lacking between commercial – you can read the trends as long as stay with the same lab Carcinoid Tumors Blood Markers Serontonin ...
Created on 20 August 2011
11. Roger J.
(Bad Berka)
... the radiation. Finally he slid the thick lead box my way and carefully handled the radiation...Lutetium 177. It was supposed to do damage to the Carcinoid tumors in my liver. I watched the medicine ...
Created on 13 June 2011
12. A Soldier's Stor
(Bad Berka)
... revealed that my gallbladder was normal. However the spots on my liver were not. A Cat Scan was ordered and the Carcinoid Tumors were found. I then opted to go to The Center for Advanced Medicine at ...
Created on 31 May 2011
13. Jim M.
(Bad Berka)
It was in September of 2010 when I finally decided to have PRRT. It had been 5 years, almost to the day, since my original diagnosis with Stage 4 NeuroEndocrine Cancer, A.K.A. Carcinoid. I knew quite ...
Created on 22 April 2011
14. 1st World Congress on Ga-68 and Peptide Receptor Radionuclide Therapy
(In the News)
... important for neuroendocrine cancers such as carcinoid and pancreatic neuroendocrine tumors because, according to Dr. Baum, NET cancer is not one disease. Neuroendocrine tumors are not a single tumor entity, ...
Created on 07 April 2011
15. Elizabeth W.
(Bad Berka)
... Cancer Online Resources (ACOR) Carcinoid Listserve and the Yahoo Groups site for Islet Cell Cancer. She related that Josh was a frequent contributor on both. I joined both sites and emailed with many ...
Created on 22 March 2011
16. About this site
(Uncategorised)
This site is maintained by Josh Mailman and Gary Murfin, who have both undergone treatment at the Zentralklinik, Bad Berka Germany and is for informational purpose only. Gary Murfin: Diagnosed with carcinoid ...
Created on 20 January 2011
17. Information for Referring Physicians
(General MD)
This section is for doctors who are considering the selection of PRRT to treat one of their patients. Considering PRRT for a Patient: What a physician should look for Progressive, somatostatin receptor ...
Created on 19 July 2010
18. What is PRRT?
(PRRT)
... tumors include gastroenteropancreatic tumors (socalled GEP-NETs), e.g. arising from the small bowel (often called carcinoid tumors), the pancreas, duodenum or stomach, but also from the large bowel or ...
Created on 19 July 2010
19. Carcinoid Foundation
(Search - Web Links / Support Orginizations)
This website is constantly being updated as new information and research results become available. Special events that will benefit the carcinoid patient are posted on a regular basis. Information about ...
Created on 30 November -0001
20. Carcinoid Foundation Blog
(Search - Web Links / Support Orginizations)
Created on 30 November -0001